The Coalition for Patient Privacy urges the Department of Health and Human Services to revise and repeal the interim final rule (IFR) establishing requirements for notification of breaches of unsecured protected health information.
“We are dismayed and disappointed with the IFR, particularly with the inclusion of a ‘harm standard’. HHS went far beyond the intent [...]

Washington, D.C. — Patient Privacy Rights’ Founder & Chair, Deborah Peel, MD, testifies before the Health Information Technology (HIT) Policy Committee today to urge the Committee to ensure privacy and patient engagement with HIT. Ensuring privacy, control of personal information, is the only way to build trusted electronic health systems and the only way to [...]

PATIENT PRIVACY RIGHTS, THE VOICE OF CONSUMERS, SPEAKS AT “HEALTH AFFAIRS” POLICY BRIEFING ON HEALTH IT
Washington, DC — On March 10, 2009 IT corporations, research organizations, and insurance companies will discuss the policies needed to advance health information technology. Patient Privacy Rights will have a seat at the table to speak for consumers, making [...]

Congress: Protect in statute what Americans assume happens when they visit their
doctors: that what they “say in the doctor’s office stays in the doctor’s office.”
Washington, D.C. — Dr. Deborah Peel, founder and chair of Patient Privacy Rights and leader of the bipartisan Coalition for Patient Privacy testifies today before the House Energy & Commerce Committee, [...]

What Could Be Scary About E-Prescribing? Plenty.
Washington, DC
Twenty five organizations, including the ACLU, the Republican Liberty Caucus, the American Council for the Blind and the National Association of Social Workers joined forces via the Coalition for Patient Privacy to urge Congress to include privacy protections in any federal electronic prescribing legislation. Read the Coalition’s letter [...]

Microsoft Raises the Bar for Privacy in Electronic Health Record Solutions
PatientPrivacyRights.Org, a national consumer watchdog group, works with technology giant Microsoft to put consumers in control of their electronic health records.
Austin, TX – Earlier this year Microsoft sought advice from PatientPrivacyRights.Org about building privacy protections into their new consumer health platform, HealthVault. Today Microsoft’s [...]